Center for Autoimmune Neurology
Philadelphia, PA 19104

215-746-8511

https://www.med.upenn.edu/autoimmuneneurology/

 

The Center for Autoimmune Neurology was officially formed in January 2014, but their work in this field dates back a decade.  The Center is dedicated to helping patients with autoimmune and paraneoplastic disorders affecting the nervous system. These disorders often cause encephalitis (inflammation of the brain) and can affect memory, behaviour, and other brain functions. In the past, most cases of encephalitis could not be explained, and treatment was inconsistent and given without any rational understanding of the disease. More recently, a large and growing family of autoimmune causes of encephalitis and other related disorders has been discovered, many of them by this group at the University of Pennsylvania. This has created a need for physicians to provide proper care to patients with these diseases.  The Center for Autoimmune Neurology was established to bring together neurologists and neuroscientists to care for these patients and learn more about the underlying diseases and how to treat them.

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Neuroimmunology Program
Casanova, 143
Recepción Edificio CELLEX
08028 Barcelona
+34 93 227 54 00 ext 4802

http://www.neuroimmunologybcn.org/

 

Diagnosis, Treatment and Research on inflammatory diseases of the brain. Better diagnosis can lead to a better personal treatment.  You can benefit from early diagnosis. 

 

The Neuroimmunology Program offers medical care and performs research on inflammatory diseases of the brain. Specifically, they are dedicated to Multiple Sclerosis, Autoimmune Encephalitis, Neuromyelitis Optica (Devic disease) and paraneoplastic syndromes of the brain.  To cure these diseases by developing new diagnostic methods and therapies...

In the Neuroimmunology Program, research groups work together in order to achieve these goals including physicians from the Hospital Clinic of Barcelona and researchers from the Centre of Biomedical Research August Pi i Sunyer (IDIBAPS).

 

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Autoimmune Brain Disease Program

 

Duke Children's

The Duke Children’s Autoimmune Brain Disease (ABD) Program is dedicated to providing innovative and comprehensive care for children and adolescents with autoimmune diseases of the central nervous system. Including: 

Autoimmune encephalitis (NMDA receptor antibody encephalitis, voltage-gate potassium channel antibody encephalitis, GAD antibody encephalitis), Central nervous system (CNS) vasculitis, Hashimoto's encephalopathy (steroid responsive encephalopathy), Neuromyelitis optica, Optica neuritis, Neurosarcoidosis, NeuroBehcet, Cerebral lupus

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Encephalitis Global

http://encephalitisglobal.org/

 

is a USA non-profit organisation sharing information and support with encephalitis survivors and caregivers. Their Inspire discussion forum is the largest and most active forum of its type in the world.

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The Encephalitis Society

https://www.encephalitis.info

 

We encourage you to connect with this wonderful organisation headquarter in the United Kingdom

For all General Enquiries:  Call +44(0)1653 692583.

For Support and Information Enquiries:  Call +44(0)1653 699599

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The Anti-NMDA Receptor Encephalitis Foundation

http://www.antinmdafoundation.org/

 

was established in Canada as a not-for profit-foundation on 26 October 2012.  It exists for all patients and caregivers, at all stages of illness and recovery.  "Together we will continue the battle; we will encourage those in the trenches; and we will fight for the memory of those no longer with us." The foundation's goals are to promote awareness, provide support, and raise funds for research committed to understanding and ending this and related diseases.

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Autoimmune Encephalitis Alliance

https://aealliance.org/

 

The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families and caregivers so that no one faces autoimmune encephalitis alone. The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care.

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Finnish Association for Ultra Rare Diseases (FAURD)

Suomen Ultraharvinaiset ry.

 

is a volunteer organisation that helps and represents Finns challenged by very rare diseases and conditions.

In a country of only 5.4 million people, with a very distinctive language, ultra rare patients are challenged not only by their disease but also with finding peer support and medical information in their native language. This is why networking, gathering and providing information, connecting people to the support they need and raising awareness comprises the core of the non-profit work at FAURD. The association also co-operates with other non-profit associations, health organisations, medical professionals and authorities in projects concerning ultra-rare diseases.

Contact: info (a) ultraharvinaiset
https://www.facebook.com/ultraharvinaiset

 

 

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GENERATE   German Network for Research on Autoimmune Encephalitis

 

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Laboratories in the United States that Test for the Antibodies in Autoimmune Encephalitis:

 

Mayo Medical Laboratories:          http://www.mayomedicallaboratories.com/

Athena Labs:                                 http://www.athenadiagnostics.com/

ARUP Laboratories:                      http://www.aruplab.com/

UPENN:                                        https://www.med.upenn.edu/autoimmuneneurology/

 

Laboratories in Europe that Test for the Antibodies in Autoimmune Encephalitis:

 

http://www.neuroimmunologybcn.org/  (Spain)

 

https://www.uksh.de/klinische-chemie/Neuroimmunologie/Analysenspektrum.html (Germany)

https://www.euroimmun.com/startseite.html (Germany)

 

https://www.i-med.ac.at/neurologie/patienten/liquor.html (Austria)

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