About Us:
The International Autoimmune Encephalitis Society was started by families and patients affected by autoimmune encephalitis. Founded September 1, 2016, the International Autoimmune Encephalitis Society (IAES), is a 501(c)(3) non-profit organization based in the state of Delaware that strives to educate the public about this emerging sub specialty in neurology, Autoimmune Encephalitis.
Our Motto:
"Empowering victims of Autoimmune Encephalitis and their caregivers through Support and Education".
Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and raising awareness with the general public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes.
We recognized the need to help people understand the disease of Autoimmune encephalitis so they can partner with their treating physician in getting proper care. We believe that understanding through education is the most valuable tool an individual with this disease or caretaker can possess. Education is power and leads to strong self-advocacy which in turn leads to better care and outcomes.
Our Mission Statement:
The International Autoimmune Encephalitis Society, (IAES), assists patients, family members and caregivers in all areas of their journey: locating expert physicians who have published in the field, and when necessary, assisting with appointments for fast and accurate diagnosis and treatment which leads to the best outcomes. We provide referrals for discounted ground and air travel and housing to make out-of-state travel to an expert possible. One on one support services offered are: Financial assistance advice that prevents a family’s bankruptcy or becoming financially destitute from out of pocket expenses due to a medical crisis. Education about medical insurance options that lead to the highest benefits including charity care, guidance on how to keep medical records and ensure best outcomes when faced with emergency health crisis including being placed on Psychiatric holds or commitment. We assist and educate members in the appeals process of life-saving treatments their insurance company has denied with a very high success rate of overturned denials. Volunteers experienced in the understanding of autoimmune encephalitis assist in crisis management as patient advocates when their help is called upon and is appropriate.
International Autoimmune Encephalitis Society (IAES) incorporated on September 1, 2016 as a 501(c)(3) tax-exempt organization. Your donations make our work possible as we aid all people who are affected by this disease. We are grateful for your support. Donations to the International Autoimmune Encephalitis Society are tax-deductible to the full extent of the law. To learn more about tax-deductible contributions see IRS Publication 526. Our Tax ID number is 81-3752344.
Our Board of Directors:
Co-Founder and President- Anji Fesler- Houston Texas
Vice President-
Co-Founder and Secretary- Tabitha Orth- Beaverton Oregon
Co-Founder and Treasurer- Gene Desotell-Fredricksburg, Virginia
Board Members with Medical Expertise:
Dr. Alexander Rae-Grant, Neuroimmunologist, Cleveland Clinic, Ohio To Head AE Clinic about to open
Dr. Michael Geschwind, Behavioral Cognitive Neurologist, USCF AE Clinic
Dr. James Morrrow, Retired Neurologist, UK, VGKC Limbic Encephalitis patient in recovery
Dr. Michael E. Newmark , Neurologist, Houston, Texas
Medical Consultants with Expertise:
Stacey L. Clardy MD PhD
Assistant Professor of Neurology, Division of Neuroimmunology, University of Utah
Director, Autoimmune Neurology Fellowship
Staff Neurologist, Veteran Affairs Health System, Salt Lake City, UT
Consultant, Primary Childrens Hospital
Imaging and Neurosciences Center
729 Arapeen Way
Salt Lake City, UT 84108
Professionals who have any interest in joining our Mission are welcome to contact us at
admin@autoimmuneencephalitis.net
The medical information on the International Autoimmune Encephalitis Society, Inc. website is provided as informational and educational resources only and in no way should be taken to be the provision or practice of medical, nursing or professional health care advice or services. The information should not be considered complete or exhaustive and should not be used in place of a visit, call, consultation or advice of your physician or another healthcare provider. All content, including text, graphics, images, videos, podcasts, slideshows, any information, contained on or available through this website, is for general information purposes only. The information on this website is not to be used, implied, or relied upon as a substitute for professional medical advice, diagnosis or treatment for Autoimmune encephalitis or any medical disorder.
You are encouraged to confirm any information obtained from or through this web site with other sources, and review all information regarding any medical condition or treatment with your physician. NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY SEEKING MEDICAL TREATMENT BECAUSE OF SOMETHING YOU HAVE READ ON OR ACCESSED THROUGH THIS WEB SITE.
Any referral to physicians is provided as a courtesy only
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