Treading Water
I woke up one morning with slurred speech, ataxia, and heightened bilateral reflexes, similar to a stroke. After a two-year period of...
NEVER GIVE UP. MIRACLES HAPPEN EVERY DAY
2-year-old Zoe is reported to be the youngest anti-NMDAr encephalitis patient to date in the Philippines. Here’s my Zoe, my 2-year-old AE...
Susannah Cahalan Discusses her Book and Movie on the Today Show
All of us in the Autoimmune Encephalitis community owe Ms. Cahalan a debt or gratitude for using her talents as a writer to tell her...
Meet the IAES Admins ~ Series
Co-founders Gene Desotell and Tabitha Andrews Orth Each month the IAES Blog will be featuring one of our volunteer Administrators working...
A Picture Paints 1,000 Words
Our 15 year old daughter, Amanda, was diagnosed with autoimmune encephalitis and found antibodies of GAD65 in blood samples. Everything...
A Tribute to Fathers ~ Our Unsung Heros
Mothers may be the most vocal front line when it comes for advocating with a child who has a chronic illness like autoimmune encephalitis...
June is Aphasia Awareness Month
What is aphasia? Until recently, I had never heard the term before, however after John’s, my fiance's, diagnosis of autoimmune...
It's OK, Daddy's Here
The parents of our AE kids have a tough road no one can dispute that. Usually we hear from the Mothers as women tend to seek out support...
Graduate Nursing Student Focuses on Autoimmune Encephalitis Population
Recently, I completed a Population Health practicum for my graduate nursing program. As part of the course, I spent 105 clinical hours at...
MAY IS MENTAL HEALTH MONTH
Although Autoimmune Encephalitis (AE) is a neurological disorder, we all know that there is a large mental health aspect to the illness....
