Our Motto:
"Empowering victims of Autoimmune Encephalitis and their caregivers through Support and Education".  

 

Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and raising awareness with the general public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes.

 

We recognized the need to help people understand the disease of Autoimmune encephalitis so they can partner with their treating physician in getting proper care. We believe that understanding through education is the most valuable tool an individual with this disease or caretaker can possess.  Education is power and leads to strong self-advocacy which in turn leads to better care and outcomes. 

 

 

Our Mission Statement:

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The International Autoimmune Encephalitis Society, (IAES),  assists patients, family members and caregivers in all areas of their journey: locating expert physicians who have published in the field, and when necessary, assisting with appointments for fast and accurate diagnosis and treatment which leads to the best outcomes. We provide referrals for discounted ground and air travel and housing to make out-of-state travel to an expert possible. One on one support services offered are:  Financial assistance advice that prevents a family’s bankruptcy or becoming financially destitute from out of pocket expenses due to a medical crisis. Education about medical insurance options that lead to the highest benefits including charity care, guidance on how to keep medical records and ensure best outcomes when faced with emergency health crisis including being placed on Psychiatric holds or commitment.  We assist and educate members in the appeals process of life-saving treatments their insurance company has denied with a very high success rate of overturned denials. Volunteers experienced in the understanding of autoimmune encephalitis assist in crisis management as patient advocates when their help is called upon and is appropriate. Click pictures to learn more.