

A Tribute to Fathers ~ Our Unsung Heros
Mothers may be the most vocal front line when it comes for advocating with a child who has a chronic illness like autoimmune encephalitis...


June is Aphasia Awareness Month
What is aphasia? Until recently, I had never heard the term before, however after John’s, my fiance's, diagnosis of autoimmune...


How A Mother’s Advocacy Literally Became Her: Saving Grace
We received the dreaded letter of denial from our insurance company 7 days before my daughter was due for her IVIG treatment. I...


“You have to Re-boot your brain” – an Autoimmune Encephalitis patient’s story of Recovery and Rehabi
It was in March 2016 that my husband Jim and I found ourselves waiting in Dr. Andrew McKeon’s office at the Mayo Clinic in Rochester,...


Raising Awareness For Autoimmune Encephalitis Through February Until World Encephalitis Day Februar
Heather Smith's story Hi Everyone! Today I thought I would share my story, at least to date. I’m 41. About a year ago I had a gastric...


Fighting the Madness: Autoimmune Depression
Autoimmune Encephalitis can be a devastating, life-altering diagnosis not only for patients themselves, but for their spouses, children,...
A Letter from President Obama to International Autoimmune Encephalitis Society
As a Co-founder of International Autoimmune Encephalitis Society, I wrote President Obama before he left office about Autoimmune...


A Mother's struggle
A Mother’s Struggle To have a very sick child must be the ultimate type of despair. Most parents rely on the medical community for help....


Newsletter-Volume1-Feb 1
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